Contact

Kontakt

NCRD Office

Network Complement
Related Diseases

C-H-Gaiser Strasse 46
73033 Göppingen

info@ncrd.ch
http://www.ncrd.ch
Donation and Sponsoring

Donation and Sponsoring

NCRD will on no account accept funding, donations or financial assistance that  could damage the good name of NCRD or result in the dissemination of incorrect information.

All donations of money or goods by commercial organizations, in particular from the pharmaceutical industry, are accepted on condition that NCRD maintains complete independence from any commercial influence from those organizations and that no rights of any kind to participate in the activity for which a monetary donation or a sponsorship has been granted are conceded to the donating organization. NCRD retains total editorial control of all materials and will not  support or promote, either explicitly or implicitly, any product or service whatever of the sponsors.

All financial cooperation must be transparent and is subject to appropriate obligations of disclosure and openness.

In addition, mandatory sponsorship criteria apply, as laid down by EURORDIS, Eurordis Policy on Financial Support by Commercial Companies at http://www.eurordis.org/article.php3?id_article=59 and by EFPIA Code of Practice on Relationships between the Pharmaceutical Industry and Patient Organizations at http://www.efpia.org/Content/Default.asp?PageID=367.

Overall, firms and businesses, when collaborating with NCRD, must  act in accordance with the following guidelines:
  • NCRD must give written approval of when and where the NCRD logo and the name may be used. Permission must be obtained for the use of all textual matter relating to NCRD.
  • Publication of press releases relating to NCRD is not permitted unless prior approval has been obtained.
  • NCRD retains the right of veto over all materials produced in connection with a commercial sponsor that contain any mention of NCRD. Sufficient time must be allowed for such permission to be obtained.
 

Donation

Donation

Support the programm and the work of NCRD

For NCRD, donations have a vital part to play in its work of improving the possible treatment options and supporting patient organizations throughout the world.

Forum

Forum

NCRD Forum - Sharing knowledge with other HAE Patients

The forum is entirely devoted to dialogue on the general topic of complement related diseases.

Cooperation

Cooperation

HAE Patient Register

The HAE Patient Register is a very important element of the HAE health care world and offers participating user groups a significant analytical and statistical basis for improved HAE therapies.